Saturday, August 1, 2015

Day 16 (7-30) Day 17 (7-31)

Thank you. Thank you to all those who have donated money, time, food, and prayers. We are so thankful for you.

Day 16

Statistics:
0900 128/74 BP
          98.7 temp
          100 Oxygen saturation

2000 112/69 BP
          97.8 temp
          100 Oxygen saturation
          17.45 lbs

Updates:
Rash around neck and hairline.
Broviac area rashy and puffy.
Went outside and smelled the flowers!
Changed broviac dressing.
Said no to symbocort.
Projectile vomiting 1X.
Coughed 1x
Grunting frequently
Xray, 2 images. On back and left side. Looking at tummy. 

Medications:
Ranitidine 2ml 2x daily
Tylenol @ 2000 for teeth
Zofran for nausea 2030
Ceftriaxone 18 ml 1x
Florajen 3 capsules
Creon 12,000 5
Clotrimazole 2x, yeast almost gone 
Albuterol 2x
Hypersal 7 % 2x

Intake:
8 TBS oats
3 teaspoons butter
3 ounces fortified breast milk
14 ounces breast milk
3.2 ounces applesauce
2.5 ounces prunes
2.5 ounces carrots

Output:
6wet
5 soiled

Doctors notes:
All is great no changes. Alittle concerned about the vomiting but we will just watch and see, took some xray pictures to see what was going on. Weight gain is good. A few crackles but getting fewer. Blessed beyond belief with all wonderful news.

Momma's notes:
Roanan is such a happy camper. Good truly blessed him with the happiest personality. I am so blessed. Projectile vomiting happened again today... Roanan was terrified. He was screaming prior to the event, and moaning afterwards. He vomited at least 5 ounces of food. It was very traumatic for my tiny human. Once the vomiting had ceased he just whined and wanted me to hold him. And hold him I did, in a puddle of vomit I cherished my child
 I felt so blessed to be his mother and so in love with him. He fell asleep in my arms was finally calm. We gave him some zofran to calm his tummy. Later we took him to xray, they took 2 shots. One on his back, and one in his left side on a sponge. Roanan does not enjoy xrays, elevators, or strange people in scrubs. He cried the whole time. We should have the results tomorrow. The doctors have zero explanation for the episodes. But I will not allow this to be pushed under the rug... I keep pushing for answers. Yeah, I'm THAT mom.

Day 17

Statistics:
0800 113/80 BP
          95 Oxygen saturation
          98.2 temp

1500 94 Oxygen saturation
          99.5 temp

2000 112/64 BP
          97.0 temp
          100 Oxygen saturation
          17.8 lbs

Updates: 
Xray clear, some poo in the right lower. Nothing to worry about. P
Projectile vomiting again.. Same time.. Again..
R was asleep. Started screaming in his sleep I sat him up and the vomit came, just milk. 
Changed IV tubing

Medications:
Ranitidine 2ml 2x daily
Zofran for nausea 1850
Ceftriaxone 18 ml 1x
Florajen 3 capsules
Creon 12,000 7
Clotrimazole 1x, yeast almost gone 
Albuterol 2x
Hypersal 7 % 2x

Intake:
6 TBS oats
2 teaspoons butter
2 ounces fortified breast milk
14 ounces breast milk
2 ounces applesauce
2.5 ounces prunes

Output:
4 wet
3 soiled

Mommas notes:
The doctors have no new anything. Vomiting is still going on, hopefully tomorrow we will proceed with action. Roanan is doing great and continues to gain weight despite the vomiting episodes. Prayers appreciated. I can tell his appetite is slacking off since the steroids have cleared his system. Also he is beginning to have gunk in his lungs again... Prayers appreciated for the health of my child and for all those battling CF. It's a tricky disease and you gotta stay on your toes to thrive. We are taking blood in the morning in hopes to see what we are missing in curing the vomiting.. Please remember all the children here along with their families...

Thank you Lord for this life. For my family, my husband, my fubabies, and my child. Thank you for medications, treatments, research, doctors, and insurance. Thank you for hope. 

Blesses be the name of the Lord, blessed be your name Jesus. 

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