Monday, August 3, 2015

Day 18 (8-1 )Day 19 (8-2)

Day 18

0830 drew 2 ml blood from broviac
0840 Ranitidine
0900 Vest 13 frequency, 2 pressure. 10 minutes
0945 2 ounces prunes, 4tbs oats, 2 tsp applesauce, .5 tsp sugar, 1 tsp butter, 1 ounce fortified milk, Florajen capsule, 12,000 Creon, 2 ounces breast milk
1010 98.6 temp
          107/64 BP
          99 Oxygen saturation
          136 heart rate
1100 nebulizer treatments
1120-1200 nap, 2 ounces milk
1130 the blood work said his cortisol was .4 should be greater than .7. He is going through steroid detox, which explains the vomiting episodes. We will begin to wein him off by doing 1 dose steroids every other day for 4 doses. (Sat, Mon, Wed, and Friday)
Thank you Lord for solving the puzzle!
1205-1215 Vest 13, 2, 10
1300 1.25 ounces carrots, 2tbs oats, 3 ounces milk, 12,000 Creon
1422 Steroid
1400-1500 nap 3 ounces milk
1530-1630 ceftriaxone via IV
1540 Vest 13,2,10
1600 1.25 ounces carrots, 1.25 ounces prunes, 1tsp butter, 2tbs oats, Florajen capsule, 12,000 Creon, aquadex
1630 2 ounces milk
1630-1730 nap
1830 2.5 ounces bananas, 2tbs oats, 1tsp butter, Florajen capsule, 12,000 Creon
1920 Nap
2000 97.4 temp
          108/81 BP
          100 Oxygen saturation
          8.135 Kilos
2020 Nebulizer treatments, Vest 13,2,17
2030 Ranitidine
2100 clotrimazole ointment

Updates:
Roanan loves to chew his IV line
Pet therapy came today, Roanan loved it. I am so thankful God placed animals here for us. I love to see Roanans smile when he pets a puppy. Such joy and happiness overtakes him. (And me)
IV line filled with blood.
2 teeth have popped through.
4 coughs
5 pees, & 5 poos
Day 18/21 ceftriaxone

Day 19

0830 98 temp
         176/64 BP
         98 Oxygen saturation
0840-920 Nap
0920 Ranitidine
0930 nebulizer treatments
1000 Vest 13,2,10
1010 4tbs oats, 2 tsp prunes, .5 tsp sugar, 1 tsp butter, 1 oz fortified milk, 12,000 Creon
1045 1 ounce milk
1130-1250 3 ounces milk
1320 98.1 temp
          100 Oxygen saturation
1400-1430 outside time, until IV issues.
1430 Vest 13,2,15
1500 Florajen capsule, 1oz fortified milk, 12,000 Creon, 1.0 oz prunes, 4tbs oats, 2tbs applesauce
1530-1600 nap 3 oz milk
1700 vest 14,2,12
1730 3tbs oats, 12,000 Creon, Florajen capsule, 1tsp butter, 2.5 ounces bananas
1830 2 ounces milk
1930 Roanans cortisol levels were actually normal, an them being low was actually an error. So that is good. But we are staying on the steroids since they have stopped the vomiting. We will continue with them via broviac them once home we will begin oral. Some of Roanans crackles have went away so that is wonderful! Once his weight reaches over 8.2 kilos we will up his enzyme dosage. His airways are much clearer and we are so thankful! We are still holding off on the symbicort.
2015 92/62 BP
          97.7 temp
          92 Oxygen saturation
          142 pulse
          8.105 kilos
2025 Ranitidine

Updates:
3 pee
4 poo
2 teeth are through!
Lela came to visit
3 coughs
New nebulizer cups
Roanan had a wonderful day. He has the best personality and I am so honored to be his mom.
The respiratory therapist are so amazed by Roanan because of how well he does treatments. He is such a brave young man and does them with a smile.
Day 19/21

Be still, there is a healer
His love is deeper than the sea
His mercy, it is unfailing
His arms are a fortress for the weak

Let faith arise
Let faith arise

I lift my hands to believe again
You are my refuge, You are my strength
As I pour out my heart, these things I remember
You are faithful, God, forever


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